Sunday, January 31, 2010

Sydney Grace's Impact on Our Lives

Jamison (Sydney's aunt) shared this with me today. I asked if she would mind if I shared this with everyone. This once again shows how much impact Sydney made here with her short time on earth. I hope you enjoy this as much as I did. Lindsey

On January 7 at 5:11 am Sydney Grace Fodrie was born into our family. Like her namesake, Grace Fodrie, Sydney Grace was destined to be a great educator. She may have only had 20 days, but in her brief time on earth Sydney taught us all so many invaluable lessons.
Sydney Grace’s life reminded us all of how very precious each day should be. She was such a fighting little spirit. No one could have struggled to stay alive harder than she. Many, many, many, times we thought that it was her last moment. She continued to surprise us all by working so hard for one more breath and then another. To see that tiny sick body cycle from dusty purple to pink over and over, to see her work for a little more time to be with her family, to see this taught me to appreciate every moment of each day more.

Sydney Grace’s story touched so many hearts and inspired a network of support that spanned the entire world. The outpouring of love for her and her family was almost beyond comprehension. Letters, blogs, Facebook fans, prayers, phone calls, cards, visits, gifts, blankets, and the most delicious meals showered down. The great outpouring of love from friends, family, and even total strangers sustained our bodies (Light Rolls, Chew Bread, casseroles and more) and our souls throughout her life. Sydney Grace taught me so much about how to care for others. There are so many times when I have not known what to do or say when a friend or a family member was hurting and so I was silent. From her I’ve learned that the words “I’m thinking of you” are powerful and strong. I learned the power and the blessing of “being there.”

As Sydney Grace’s story unfolded I learned so much about each person’s hidden potential. After the first sonogram Joel called to tell me the doctors had seen some problems. He said that for about 30 seconds he was disappointed and worried about the demands a special needs child would present. Then he said that he realized every child is born with challenges and gifts. He said, “It is each parent’s job to help their child meet his or her fullest potential, whatever that potential may be. ” I am still awed by the wisdom and bravery of these words. Joel and Lindsey accepted the job of raising a child with severe challenges. They accepted that Sydney’s potential may have been only to breathe a few seconds. They were still determined to give Sydney her chance. When I first saw this tiny four pound child I could not have dreamed the impact she would have on her world. None of us could have imagined that Sydney would have the power to touch more lives in her twenty days than most people do in their entire lifetimes. I thank Sydney for making me realized I can never know the true potential, unseen and unimaginable, inside each person.

There are so many lessons of love I have learned from Sydney. I learned so much of the love of a mother as I watched strength flow from Sheri to Lindsey, from Lindsey to Sydney, from Sydney to the world. I have seen sisterly love as Lindsey, Paige, and Jessica leaned on each other, forming a triangle of strength. I saw love spring to life, instant and strong, in the eyes of my Jessica, as she held Sydney in her arms for the first time. I watched Joel and Glenn watch over their women with such love and concern and turned to see that same look in J and Will’s eyes. I so appreciate Kayla being there even when she was recovering from surgery. I have learned how friends carry you through the darkest times with love. I feel such gratitude for the kindness of the Hancock family, Hilary, Janet, Josie, and so many more. I learned love makes laughter bubble up in the worst minutes and most awkward moments, transforming them into sweet memories.

Lindsey spoke at Sydney’s funeral to say, “So to those of you that might fear we did not get the miracle we all prayed for, I say we received the full measure of that miracle and more.” I so agree. I am so humbled to have witnessed so many miracles throughout Sydney’s short life. Thank you, Sydney Grace. Thank you for making me see the miraculous gift of each precious day. Thank you for teaching me so many things about the miracle inside a caring gesture. Thank you for making me realize that miraculous hidden potential may lie inside each of us. Most of all Sydney Grace, thank you so much for each of the 20 days in which you showed us all the miracle that is LOVE.

A Better Day

Thanks everyone for your prayers. I feel them working. I am doing better today than yesterday. I know that could change any minute, but right now I am feeling ok.

Joel, Rafe and I visited Sydney's grave this morning. I wanted to make sure all her flowers were in place after all the rain and wind. Everything still looked perfect. I took some of the roses to hopefully dry and press. I am planning on making a scrapbook for Sydney and want to have the roses in it. I am so thankful that I have so many items and memories that I will be able to put in her book. I never thought I would have twenty days of memories.

Love to all,

Saturday, January 30, 2010

My heart is aching..

My heart is aching for Sydney Grace. One of Sydney's favorite positions was to lay on my chest. It seemed to comfort her the best. The night before she passed, the only way she would sleep was for me to rock her in my rocking chair with her against my chest. I feel like part of my chest is missing. It feels so empty inside. I know that as time goes by, my heart will heal, but at this moment I can't see when that will be.

Please continue to pray for us,

Friday, January 29, 2010

We did get our Miracle

Some people might worry that we did not get the miracle that we all prayed for. However, when we found out that Sydney Grace had Trisomy 18, the doctors told us she would only survive minutes if any. Because of her extreme heart defects, I was hoping to be able to hold her even just once. Instead, I was able to hold her for twenty wonderful and amazing days. The doctors also thought she might never open her eyes. For some reason, that was one of the most upsetting things for me. I desperately wanted to see her eyes and my prayers were answered. I got to look into her eyes for 20 days. As she was taking her last breaths, and I was holding her, we just looked into each other eyes and it was one of the most beautiful experiences of my life. So to those of you that might fear we did not get the miracle we all prayed for, I say we received the full measure of that miracle and more.

Sydney Grace has touched so many lives in her short time. Joel and I have been amazed at the number of people that have been touched by Sydney Grace. I know that I will probably never touch the number of people all over the world that our precious Sydney has in her short time.

Of course, we all search for answers as we pass through difficult times in our lives. Both Joel and I trusted in God that there was a reason for Sydney to be sick. We knew that God would not give us anything that we could not handle. I believe the reason is that Sydney Grace brought so many people together and taught people about love. I feel very privileged to be her mother. It is an honor that God chose Joel and me to be her parents.

We want to thank everyone from labor and delivery at Carteret General. They treated us so well. We had the best nurses and doctors we could ever ask for, and we can never repay them. We want to thank Dr. Rule. My heart wants to burst when I think about all the support and love he showed Sydney Grace. We want to thank Aly Dart and Hilary Brindley. They have been so supportive of our family over the past three weeks. I don’t know how we will ever repay them. We want to thank all the church families across the state. Their prayers have uplifted our family. We want thank all the people that have shown us support by visiting in person or on facebook and the blog. It has been a great comfort to receive all the encouraging messages. Finally, Joel and I want to thank all our family. They have been a source of strength for us over the past five months.
So, please do not feel sorry for us. As I said before, it is a privilege to say that we are the family of Sydney Grace Fodrie.


Thursday, January 28, 2010

Celebration of Life

Lindsey, Joel, Rafe and their families are doing as well as can be expected. They all have their moments. The visitation for Sydney Grace will be tonight at Munden Funeral Home from 6-8pm and the Celebration of Life will be tomorrow at 11am at Carteret Memorial Gardens in Beaufort.

In lieu of flowers, donations can be made to the Carteret General Hospital Foundation - Nursery, 3500 Arendell Street, Morehead City, NC 28557.

Thank you all for your thoughtfulness and generosity.

Potential Gone

Potential Gone

The future that I thought was bright,
now all looks dark without your light.
Potential gone; I cannot see
a future now for you, or me.

And yet; although your time was short,
and you didn't have the life you ought,
you brought me joy beyond compare
to counter now my dark despair.

You brought me hope for nine months long.
You placed within my heart a song.
A longer life was not to be.
So now, with prayers we set you free.

O God, please take this little life,
that won't now see a world of strife.
Surround your child with all your love,
and take her to your home above.

Dick Underwood 2008

Wednesday, January 27, 2010

Sydney Grace has passed

At 2:07 am, our precious angel passed away in my arms. Sydney Grace left us peacefully without suffering. We were blessed to have her for 20 amazing days. When we found out about her Trisomy 18, we did not know the reason. We now know one of the reasons is that she would touch so many peoples' lives and brought so much love. Forever grateful, Lindsey, Joel and Rafe

Tuesday, January 26, 2010

Breathing Problems

Sydney is not breathing well tonight and has had feeding and bowel problems today. Her breathing is more labored and that is with the oxygen on. She is having a lot of residual in her feeding tube and seems to be very constipated. Please be in prayer for them tonight.

Monday, January 25, 2010

What is a Miracle anyway?

There has been so much talk about Sydney being a miracle, and rightly so. I decided to look up the word miracle in the dictionary. This is what it said.....

1. an effect or extraordinary event in the physical world that surpasses all known human or natural powers and is ascribed to a supernatural cause.
2. such an effect or event manifesting or considered as a work of God.
3. a wonder; marvel.

Is that not the PERFECT definition of Sydney Grace!? Happy 18 day Birthday Sweet Girl!!

Lindsey emailed me this picture of her today. She is such a prissy girl!! She has had a very good day with no apnea episodes! Praise God for these wonderful days with Sydney Grace!

Sunday, January 24, 2010

We Love Good Days!

Sydney has had a pretty good day. She has had a few apnea episodes and has stayed on oxygen most of the day. Her new formula, nurtramigen, seems to be agreeing with her. She continues to have lots of visitors that love her very much! She is our MIRACLE and continues to amaze us each day! She is such a fighter! She is continuing to bring joy to our lives every minute that we have with her. Lindsey

Saturday, January 23, 2010

What A Blessing!

Sydney has had a few apnea episodes today, but nothing like a few days ago. She has definitely developed a little personality. She loves to be held and gets fussy when she is put down. Over the past 16 days we have experienced many highs and lows, but we would not trade these days for anything. As I have said before, we did not expect but a few minutes, if any, with her. She has blessed us more than words can say. Thank you for your continued prayers.

Lindsey (Sydney's Mom)

Friday, January 22, 2010

Home Again

Sydney is back home and is on oxygen for the time being. She is being given pedialyte for the dehydration and her formula has been changed. Her color is much better now and the apnea has decreased considerably. Thanks so much for your prayers and HAPPY TWO WEEK BIRTHDAY SYDNEY GRACE!!

Thursday, January 21, 2010

Hospital Visit

Sydney was taken to the hospital last night for dehydration caused by diarrhea. She was given pedialyte through her feeding tube since they could not get an IV in her tiny veins. They have also been giving her oxygen which has helped with the apnea. She should be heading home shortly. Let's pray that the rest of today and tonight are a little more peaceful.....

Wednesday, January 20, 2010

Another Night

Today Sydney has continued with apnea. She has not gone more than two hours without an episode since midday Monday. She must be exhausted and I'm certain her family is exhausted. Please pray for renewed strength as another long night approaches.

Sweet Big Brother

Rafe is loving on his little sister today....


Tuesday, January 19, 2010

Little Fighter

Sydney Grace continues to fight through many apnea episodes. This is a message her mom wrote on Facebook a little while ago.....

"Sydney Grace is still having major apnea episodes with little time between them. I am planning on an all nighter. I just can't not hold her. I want her to feel her mommy with her at all times. Lindsey"

Please continue to pray for this family. This has to be excruciating.

Rough Night

Sydney had a very rough and restless night. She had many bad apnea episodes and her breathing was labored. She did rest a little this morning, but began again with apnea a little while ago. Please pray for little Sydney and her family. They obviously didn't get any sleep last night either and hate seeing her struggle like this.

Monday, January 18, 2010

Day 11

Sydney has had a couple pretty bad apnea episodes this afternoon, but none since about 5:00. Those of you that have asked about her heart condition, this is the medical terminology for it: Pulmonary Valve Atresia with Intact Ventricular Septum, Hypoplastic Right Heart and Aortic Valve Stenosis. I hope I got all of that spelled right.

There was a little excitement at the Fodrie house today. A friend of the family (Katie) stopped by to visit today and while watching Aunt P put Sydney's feeding tube in she passed out cold. So, they had to call the EMS, and of course everyone around thought they were coming because of Sydney. Katie came to and is ok thank goodness. Scary scary!!

Please everyone pray for Sydney to have another good night and thank you for your prayers thus far. Here's a few pictures from today.

Sydney had another good night with only a few minor apnea episodes. There will be a more detailed post tonight. Thanks for your prayers!

Sunday, January 17, 2010

Good First Night

Sydney had a great night. She is such a good baby. We are so happy to be home. We never thought we would be able to bring her home. That was her big brother's big wish before she was born. Thank you so much for all the prayers. She is our MIRACLE. We have had her for 10 wonderful days and hope to have her for many more. Love, Lindsey, Joel, Rafe, and Sydney Grace Fodrie

Saturday, January 16, 2010

Home Sweet Home!

Sydney Grace is enjoying her glider at home with her family tonight! I finally got the meet her today and she is such a beautiful, sweet girl. Can we all pray for a peaceful first night home? No one thought this was a possibility, but God always shows Himself in even the most desperate situations!


Sydney Grace is on her way home as we speak!! Praise God!!! She had a very good night and Sydney's family is ecstatic that they get to take her home! There will be more pictures later.....

Friday, January 15, 2010

A Better Day

Sydney had a pretty good day today with less apnea episodes. It is a possibility that tomorrow they could take her HOME!!! Thank you everyone for your prayers! They are being answered!!!! Hopefully tomorrow I will get to meet this sweet girl!!!

Friday AM

Last night was easier, Sydney Grace's episodes with apnea were fewer, and less taxing to her. If all continues as hoped, the family will take Sydney Grace home tomorrow!

Thursday, January 14, 2010

One Week Old

Sydney is one week old today! She is a little better this afternoon, but is still having some apnea. The past week has been filled with many different emotions, highs and lows. Thank you to everyone who has shared in those emotions and prayed for Sydney and her family. She is certainly a blessing to us all!!

Not much change

Sydney continues to struggle today. This morning was a tad better, but she started with the apnea again as I was talking to Paige around noon. Baby Sydney certainly has a lot of fight! I just pray that they feel God's presence throughout the day.

Last Night

Sydney Grace had a very bad night. She is having many apnea episodes and struggling for every breath. This is obviously agonizing for her family. Please continue to pray for her to stop suffering.

Wednesday, January 13, 2010

Not doing well

Sydney has not had a good night. She has had several bad "episodes" today, but tonight was the worst. Please continue to pray for Sydney not to suffer. This is just horrible.

Apologies for not getting the prayer warrior slideshow updated, promise to do it tomorrow.


Some Better

Sydney Grace is doing some better this evening. However, she is still a very sick little girl. As you can imagine, today has been very rough on Sydney's family. Thanks to everyone for your prayers and please continue to pray. I will continue to update as often as I get information.


Update #2

Lindsey would like like for everyone to please pray that Sydney doesn't suffer.......


Sydney Grace is struggling. Please pray for her and especially Lindsey and Joel.

Happy Six Day Birthday Sydney Grace

Happy Six Day Birthday to Sydney Grace! Sydney had a good night and is getting lots of attention and kisses from her family today. Thanks to everyone for praying for her and spreading the word. Thank you also to Kelly from Kelly's Korner for tweeting about Sydney. Prayers are being answered and will continue to be answered in the coming days.

James 5:15-17 says "Therefore confess your sins to each other and pray for each other so that you may be healed. The prayer of a righteous man is powerful and effective." and Mathhew 18:20 "As we gather together we can claim God's powerful promise, For where two or three come together in my name, there am I with them."

And just to make things clear, we do not believe that our prayers are only answered when we get the answer WE want. God ALWAYS answers our prayers in His perfect way, regardless of if it's the answer we want/expect or not. So, just because yesterday's news was not what we prayed for, we will continue to pray and continue to Praise God for he is ALWAYS GOOD!

Tuesday, January 12, 2010

Pediatric Cardiologist Appointment

Sydney Grace had an appointment this morning with a Pediatric Cardiologist. They did an ultrasound of her heart. And and suspected, her heart defect is very serious. Her prognosis is the same. Please pray for Sydney Grace and her family, especially Joel, Lindsey and Rafe. They've had a rough day.......

I've added a few pics to the Prayer Warrior Slideshow.....

No more Jaundice!

Sydney Grace no longer has jaundice! There will be a more detailed update coming later. In the meantime, check out these pictures from today. I love the one with her legs crossed!!

Sydney Grace no longer has jaundice! There will be a more detailed update coming later. In the meantime, check out these pictures from today. I love the one with her legs crossed!!

Miss Priss

This precious picture was taken this morning, on Sydney's FIVE DAY BIRTHDAY!!! HAPPY BIRTHDAY SYDNEY GRACE!!!

Monday, January 11, 2010


Sydney has a light case of jaundice. Dr. Rule decided to let Sydney spend a few hours on the "bili" blanket. She is resting peacefully - it's the longest stretch of time since her birth that she has been out of the arms of her family! Sydney's vitals are still good and Lindsey's blood pressure is much better. The family expressed many thanks today for all the calls, prayers, and love shown to them during this time.

I've had a couple people ask about sending cards. If you would like an address to send a card to, please email me at

Day 4

Sydney Grace is having another good day! They are upping her feedings from the feeding tube and are continuing to try to get her to drink more out of the bottle. Her heartrate is still good. Please continue to pray for little Sydney. She has had 4 very good days, but we cannot lose sight of the fact that she has Trisomy 18 and is still very sick. Sydney's family is enjoying every second of her miraculous life.

We would still love to see your pictures and add them to the slideshow of Prayer Warriors. You can email them to

Psalm 139:13-14

For you created my inmost being;
you knit me together in my mother's womb.

14 I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.

Happy 4 Day Birthday Sydney Grace!!

Sunday, January 10, 2010

Latest on Sydney

Not much has changed with Sydney Grace, she is still doing great! In about 7 hours she will be 4 days old! Please continue to pray for her feedings and for Lindsey's blood pressure. Pray for rest for the entire family. Anyone who has spent a night in the hospital knows how little sleep you get. God is doing great works in and through Sydney Grace!!!

I've also added to the Prayer Warrior slide show. It is amazing to me how many people from all over the country and world are praying for little Sydney. THANK YOU!!

Sydney Grace's Prayer Warrior Photos

People are praying from all around for Sydney Grace! Here is a sample! Send us your pictures and keep praying!!

Pictures of Answered Prayers

We asked you guys to pray for Sydney to take more from a bottle and guess what?! She took 7cc's this morning!!! That's over double what she took yesterday! Praise God! Thank you so much for praying!!

Three DAYS Old!!

Happy Three Day Birthday Sydney Grace! She (and HE ^ ) just continues to amaze us! It is unbelievable what the power of prayer is doing for this baby girl. We are all so thankful for your prayers, but please don't stop praying! We ask that you request prayer for Sydney Grace at your churches this morning. Let's continue to bring God's people together and see what HE can do!

Email me YOUR pictures!

Ok, lets try this out....Email me ( a picture of Sydney Grace's name in your hometown. It could be as simple as writing her name on a piece of paper and holding it up in your living room and taking pic, or holding her name up beside your hometown sign. Maybe write it in the sand if you live near the beach. If you know someone famous, ask them to pray with you for Sydney, then snap their pic with her name. Get the gist? We firmly believe in the power of prayer and we would love to spread Sydney's story of God's work around the world. Just be sure to include her name and your location....

More Aly Dart Photos

Saturday, January 9, 2010


Sydney Grace took 3cc's from a bottle today! Praise God! She is still getting most of her food from the feeding tube, but 3cc's is great! Her heart rate was 132 bpm, which is also wonderful. We cease to be amazed by the fight in Sydney Grace. Thank you so much to everyone who is praying. Prayer works! If you want specific things to pray for, please pray for her to continue to take more from the bottle. Pray for Lindsey's (Sydney's mom) blood pressure. Also, pray for people to be touched by Sydney's life and to see Christ's Love through her. I'll leave you with a story that was left on Sydney's Facebook page that I believe says it all....

Once upon a special day in Heaven up above , The tiniest souls sat at God's feet, surrounded by his love. The time was coming, very soon, God said, do not be scared. Your family awaits your arrival, now let us get prepared. And so God looked upon these souls, in mute consideration. He knew the life each one would live, He weighed each situation.

The souls chatted amongst themselves, and wondered who they'd be. They knew the day grew closer; soon, they'd meet their family. How would you like to change the world? God asked each soul in fun. The chance to change a soul, a heart, is held by only one. I'm going to make the world laugh, one soul said with a smile, for laughter heals a broken heart, and helps us through each trial. Then take with you the brightest smile, and share your laughter well. The soul thanked God immensely, and down to earth he fell.

And I'll remind the world to sing, a sweet little soul told the Lord. I have the gift of a beautiful voice; I can hit every note and every chord. You’ll have the gift of music then, a voice, lovely and strong. Share your gift with others, and let them hear your song.

I will show compassion, the next little soul raised her hand. Some people only need a friend, someone to understand. Compassion is a good thing, God said with much delight. To you, I will give mercy. You'll perceive wrong from right. And so each soul shared every thought, their plans, their hopes, their dreams. And God explained that life, it is, much harder than it seems. And as each soul began to leave in a scurry of laughter and fun.

Heaven became quiet and still, for left was only one. Come sit with me my little child, God said with just a sigh. Do you know how many you will touch, in a world left wondering why? Before your life comes to an end, you will know much strife, but you'll teach those who know you, to cherish the smallest things in life. And some may only know you through a simple photograph, they'll never hold you in their arms, or memorize your laugh. Some may only know you through the words they read each day, but you'll do something wonderful, you'll make them stop and pray. The tiniest soul raised her head up, to touch God's firm, strong hand. Father, I am ready for, the life that you have planned. And I will do the best I can without a word or deed. For you Lord, are the planter, and I will be your seed. She could already hear many praying, and although they had not seen her face, they were praying for her safe arrival, they were asking for mercy and grace. What talent do I leave with Lord? What gift do you impart? All that you will need, God said, I've placed within your heart. And so God kissed this tiny child, knowing all that she would be, and whispered as he watched her go...You'll teach them . . . to love me.

- Author Unknown

Aly Dart's Pictures of Sydney

The Miracle of Sydney Grace

Let me first say that Sydney Grace is a miracle. This is her far. Sydney Grace was born on January 7, 2010 at 5:11am with Trisomy 18. She weighed 4lb 3oz and was 15 1/2 inches long. Before Sydney Grace was born, her parents were told that if Sydney made it through childbirth, she would probably only live a couple of hours, if that. Sydney is now 2 days and 10 hours old and she is still doing great. At last check, her heart rate was 130 beats per minute and her color was very good. She is defying the odds and it's all by the Grace of God and the power of prayer. Please join us in prayer for this little miracle and spread the word to others so they can also pray.

New Blog

I've created a blog so family and friends who do not have facebook can follow sweet Sydney Grace. It's a work in progress so please be patient. And if you have any suggestions, please email me at

Thanks, Hilary